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Organizations 16
Personal Pages 18
Support Groups 16
United Kingdom 4
| | Genetic Disorders - Conditions and Diseases, Health 700
MEB Disease - Genetic Disorders, Conditions and Diseases, Health 3
Muscular Dystrophy - Conditions and Diseases, Health, Kids and Teens 4
 Becker Muscular Dystrophy Information ExchangeBecker Muscular Dystrophy Information Exchange
 Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
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DMD InformationDMD Information
 Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
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DMD PioneersDMD Pioneers
 Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
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Duchenne/Becker Muscular DystrophyDuchenne/Becker Muscular Dystrophy
 Includes key facts and animated slide shows of causes, diagnosis and treatment.
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FSH-MD Support GroupFSH-MD Support Group
 Provides support for those with Facio Scapulo Humeral and their carers.
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General Practice Notebook - Duchenne muscular dystrophyGeneral Practice Notebook - Duchenne muscular dystrophy
 Clinically-oriented information.
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A Guide for ParentsA Guide for Parents
 This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
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Living For Today, Preparing For TomorrowLiving For Today, Preparing For Tomorrow
 Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
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MDA Ride For LifeMDA Ride For Life
 Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
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Muscular DystrophyMuscular Dystrophy
 Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
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Muscular Dystrophy CampaignMuscular Dystrophy Campaign
 Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
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National Registry of Myotonic Dystrophy and FSHD Patients and Family MembersNational Registry of Myotonic Dystrophy and FSHD Patients and Family Members
 Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
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NINDS Muscular Dystrophy Information PageNINDS Muscular Dystrophy Information Page
 Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
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Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular DystrophyPrevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy
 Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians. [PDF] (December 1, 1997)
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